Thursday, October 08, 2009

Life goes on....

It's been more than a year since I was diagnosed with Pancreatic cancer. In addition to the dreaded treatment protocols such as chemotherapy, radiation therapy, etc,, daily pains and discomforts has become part and parcel of my daily existence. Not wanting to sound perverted, I am beginning to get used to these pains and discomforts. I guess, that is the normal price to pay for wanting to prolong the life. The only option I have now is to find ways to improve the quality of my existence.

I am blessed to be able to enjoy good medical services to help me cope with the management of living with cancer. On this score, I would like to thank Dr Tan Meng Kuan of TungShing hospital for making chemotherapy less painful for me, Dr John Low of Pantai Medical Centre for managing my present treatment strategies such as oral chemo, radio therapy, etc., Dr SY Loh of University Malaya for advising me on qualitative aspect of my remaining life, and Hospice Malaysia for helping me to cope with symptoms management. I am also greatly indebted to my family members for their understanding and untiring efforts to provide care to me. Indeed, I thank God for given me the opportunity to receive the best medical care, a loving family to take care of me during my times of distress, and my friends for providing me with moral support. One undeniable fact is, modern medicine, while not completely able to knock off the cancerous tumor in my body, but it does significantly lessen my discomforts and greatly improve the quality of my remaining existence. The Almighty with his amazing grace has provided me with abundances ! Praise the Lord.

In late September 2009, I visited my hometown, Taiping. The foods, as usual, are as fantastic as always. The Lake Gardens, the Burmese Pool, my alma mater, and various other places of interests, are also as beautiful as always. I hope they will be forever beautiful as long as the Taiping Hills stand. I hope I can be given more opportunities to visit my home town as often as I want.

The Taiping Lake Gardens
The Taiping Lake Gardens
Taiping War Cemetery
A pre-merdeka tri-cycle
My Alma Mater

I went back to good doctor last week for my scheduled consultation. The blood test indicated that my CA19.9 marker has increased compared to last month's result, but the doctor advised me not to unduly worry about the latest result. The doctor advised me to come back for another consultation in a month's time. In the mean time, the doctor gave me the green light to eat whatever I want, have my regular coffee, enjoy my cold beer as often as I want, and enjoy my life !

My main concern now is, since the completion of my radiation therapy, I lost a lot of weight, probably due to lack of appetites. I am now weight only 56Kg compared to my pre-radiation therapy's weight of 75KG. So, the immediate objective is to bring my weight back to around 70Kg before I consider new treatment protocol. At the moment, the doctor has not prescribed any maintenance medications for me. For the time being, I am taking a dicotion of herbal drinks on alternate day. It is basically a combination of garden herbs consists of 黑面将军 (Strobilanthes crispus), 爬樹龍 (Rhaphidophora decursiva), 甜 (Stevia rebaudiana), 四方藤 (Caulis Cissi Hexangularis), 紅田鳥 (Alternanthera sissilis), and 白鶴靈芝 (Rhinacanthus nasuta).

Yesterday evening, while brushing my teeth, I broke a tooth. Well, after months of aggressive treatment, my teeth are becoming brittle. I got to be more careful in brushing my teeth in the future. This morning, I went to the local dentist to assess the damage. The dentist took half an hour and managed to reconstruct my broken tooth, and it costs only RM 80 ! A job beautifully done.

I am now writing my second book, “Conversations with CK – Living with Cancer”. I hope to complete the draft for final editing by January 2010. The proceeds from the sales of this book will go into charity, most probably an orphanage. In the mean time, I am still sourcing for sponsorship to cover the costs of editing, design, and production. I hope the funding can come in during these two months. I have faith that the Almighty will made the necessary facilitations to ensure success of this small project.

Praise the Lord......

8 comments:

Randolph said...

"In the mean time, the doctor gave me the green light to eat whatever I want"

CK, this statement sent a shiver down my spine. I hope you are not taking this ill advice seriously. Take care!

Anonymous said...

I suddenly remember another expedient method. In Buddhism, we liberate life because we believe that the karmic rewards of prolonging another animal's life is to prolong your own. Check this out: http://paramita.typepad.com/

On my part, I have never tried this method, having no wish to prolong my life. So I do not know much about its efficiacy. But I do know that the Medicine mantra and teh Great Compassion mantra is very efficiacious...

Hope this helps. :)

Anonymous said...

Beautiful pictures you have there. I wish to visit Taiping Lake Garden someday. Hope tmr will be a brighter day for you.

Take good care my friend.

Anonymous said...

Good shots of Taiping. How come never take the pictures of the great food also? Something for you to keep up on.

SHANGHAI: The stress of modern living had prompted many around the world to learn qigong. Recent joint studies from China and the United States also show that qigong can help cancer patients live longer.

One community club in Shanghai is practising a form of qigong that has helped members recover from life-threatening illnesses over the past 20 years.

Cancer survivor Qiu Jia Ming, 65, who suffered from pancreatic cancer years ago, said: "I was diagnosed with pancreatic cancer when I was 50 years old and the doctor told me I only had three months to live. But I've survived 14 years now."

http://www.channelnewsasia.com/stories/health/view/1010774/1/.html

ONE PARAGRAPH THAT EXPLAINS LIFE!
Arthur Ashe, the legendary Wimbledon player was dying of AIDS which he got due to infected blood he received during a heart surgery in 1983. From world over, he received letters from his fans, one of which conveyed: 'Why does GOD have to select you for such a bad disease'?
To this Arthur Ashe replied:
'The world over -- 50 million children start playing tennis, 5 million learn to play tennis, 500,000 learn professional tennis, 50,000 come to the circuit, 5000 reach the grand slam, 50 reach Wimbledon, 4 to semi final, 2 to the finals, when I was holding a cup I never asked GOD 'Why me?'.
And today in pain I should not be asking GOD 'Why me?'
Happiness keeps you Sweet
Trials keep you Strong
Sorrow keeps you Human
Failure keeps you humble
and
Success keeps you glowing, but only Faith & Attitude Keeps you going... EP.

Anonymous said...

More info on the training here. Not sure if it is updated. I will be learning from my newphew as well this weekend. EP.

http://guolinqigong.blogspot.com/

Anonymous said...

Hope not info overload. In case you have not see these.

These are the companies that does Clinical Trials. They may pay for the expenses.

http://www.clinicaltrialssearch.org/singapore_clinical_trials.html

Can ask for updates.
http://www.clinicaltrialssearch.org/osi774_tarceva_plus_gemcitabine_in_patients_with_locally_advanced_unresectable_or_metastatic_pancreatic_cancer.html

http://www.centerwatch.com/clinical-trials/listings/studydetails.aspx?StudyID=133381

http://www.nccs.com.sg/news/2009/articles/090102.htm

Still need to plan out the schedule on exercise/focus and diet.

Anonymous said...

You are an amazing human being. I hope you're enjoying your chemo-free days to the maximum. Do what your body and heart tell you to do. Also,keep on sending pictures. Allow me to experience that part of the world through your eyes. May the force be with you.

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~~May God Bless You.